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Information for Children with Special Health Care Needs

Open in new windowThe Family Support Network of North Carolina
(1-800-852-0042) -- The Family Support Network of North Carolina provides support and information to families of children with, or at risk for, special needs and to the service providers who work with them across the state.

This organization administers 18 local Family Support Programs (covering 56 counties) that provide information about local resources and services to families and service providers. Programs match families with emotional support, information, and resources.

Family Support Network of N.C. also coordinates a project for families with foster children: a toll-free Central Directory of Resources (800-852-0042) and the North Carolina Early Intervention Mentor Program.

Open in new windowThe Medical Home Initiative for Children with Special Health Care Needs (CSHCN) in North Carolina integrates with the state's existing Title V and primary care infrastructure and uses processes and approaches demonstrated to be effective in building systems of care for children and their families.

Open in new windowAmerican Academy of Pediatrics' Medical Home Initiative for Children with Special Health Care Needs -- The National Center of Medical Home Initiatives for Children with Special Needs provides support to physicians, families, and other medical and non-medical providers who care for children with special needs so that they have access to a medical home. Open in new windowAvailable in Spanish too.

Recommended Publications

Open in new windowNorth Carolina Partnership for Children (Smart Start) publication "Effective Practices: The Medical Home -- Every Child Deserves One!"
This publication provides a better understanding of what a medical home is and its importance to the overall health of children. Community strategies are included to help promote a medical home for every child. Written by Tom Vitaglione and edited by Vickie Newell (2002).

Open in new windowSeton Healthcare Network's
"Out of the Emergency Room: Communicating Healthcare Options to Low-Income Texans"
This study seeks to penetrate what lies beneath the endless stream of children whose parents think their best health care option for a primary care treatable illness is the emergency department of a hospital. It poses a central question: What drives the parent's health care decisions? And finally, it investigates what parents think will help them use their health care benefits in the way the benefits were designed: to have a primary care provider and a medical home (2002).

Organizations

Open in new windowNational Initiative for Children's Healthcare Quality (NICHQ) is an education and research organization dedicated solely to improving the quality of health care provided to children by raising awareness of the need for better children's health care, helping clinicians and practices improve care and undertaking research to identify best practices.

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Last updated: March 2010

 
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